Specialized care for individuals with Huntington’s Disease (HD) and Amyotrophic Lateral Sclerosis (ALS).

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Program Overview

Huntington’s Disease (HD) and Amyotrophic Lateral Sclerosis (ALS) are neurodegenerative diseases that, at the present time, do not have a cure. They cause serious physical and cognitive impairments in those affected by the disorders. These can include a loss of movement or involuntary movements, difficulty with speech or swallowing, changes in behavior, dementia-like symptoms, and much more. This, in turn, increases the demand for patient-centered care from skilled health professionals.

Sitrin’s NeuroCare program delivers comprehensive care from onset through progression of each of these diseases. The multidisciplinary team collaborates to determine an individualized long-term health plan and continuously evaluates residents to make care adjustments. They assess functioning, treatment, therapy, and communication options, while providing comfort and consistency. The overall goal is to improve quality of life for residents through a specialized, home-like environment.

Key Facts

  • First and only of its kind in Upstate New York, and one of only nine in the country.
  • Recognized by New York State as a Neurodegenerative Disease Center of Excellence.
  • Awarded Huntington Disease Society of America’s 2019 Inaugural Long-Term Care Award.
  • Offers an average of 14 group and 20 individual activities and outings each week.
  • Invented the Huntington’s Disease Diet, combining equal parts pureed and mechanical soft solid foods for easier consumption.
Number of staff unit employees
Age of youngest ever NeuroCare resident
Number of different counties from which residents have hailed

Wish List

  • Reclining shower chairs
  • iPad (for communication & recreation)
  • Sponsor monthly activities
  • Sponsor resident theme party


  • Engages residents in recreational activities tailored to their ages, functional abilities, and unique interests.
  • Eases residents in transitioning from home to long-term setting by encouraging family involvement.
  • Provides the comforts of home to each resident with personalized bedroom and bathroom, as well as shared living and dining rooms.
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